In 2007, Marilyn’s youngest daughter, Isabella, was diagnosed with a rare Leukemia (JMML) at 7 months of age. The ONLY treatment for this rare disease was, and still is, a Bone Marrow/Stem cell Transplant. Not enough advancements have been made in the treatment of this cancer affecting young children.
Unfortunately, none of Isabella's family were a match for her. Although Isabella did find her match, she succumbed to complications 6 months later. Isabella taught her family so many lessons while she was here. One of the most important lessons they learned was the concerning lack of diversity in the Be The Match Registry. While they searched for her donor, Marilyn had entered her other children’s and her own information only to find that they had no matches out there.
Marilyn will be donating a percentage of the proceeds from the sale of her book to the Isabella Morales Foundation. In which they are dedicated to increase awareness of the need for diversification in the National Bone Marrow Registry. Her family works to raise awareness for the need of Bone Marrow Donors of Latino and mixed ethnic backgrounds.
Have you ever hoped and prayed for a positive outcome to a situation or illness? When that didn't happen, did you feel like God turned his back on you? It feels like you are getting a “NO” from the universe. This book takes you into the Journey of a young woman, nurse and mother as she navigates her own traumas and finds purpose through her pain. One of hundreds of Public Health Nurses working in NYC on 9/11/2001, Marilyn Morales shares her memories and the PTSD ( Post - Traumatic Stress Disorder) that she suffered from after this event. Years later in 2007, Marilyn’s youngest daughter, Isabella, was diagnosed with a rare Leukemia at 7 months of age. The only treatment for this rare disease was to have a Bone Marrow Transplant. None of the family were matches for Isabella. Although Isabella did find her match, she succumbed to complications 6 months later. This experience the author calls her “personal 9/11” as she then suffered from many of the same signs and symptoms she had after the initial tragedy of 9/11. Today Marilyn speaks on the benefits of Holistic modalities to assist with stress, trauma and grief. Her family works to raise awareness for the need of Bone Marrow Donors of Latino and mixed ethnic backgrounds. Sometimes the answer is “No” because the purpose is larger than we can ever imagine.
"Given the current makeup of the Be The Match Registry®, the likelihood of finding a match for a patient in need of a transplant ranges from 29-79% depending on patient ethnic background. Because genetic traits used to determine a match are inherited, patients are most likely to match donors who share the same ethnic background. Improving the ethnic diversity of the registry improves all patients’ odds of finding a life-saving match, regardless of their ethnic background. Adding more potential donors and cord blood units to increase the ethnic diversity of the registry remains an important focus for Be The Match®."
Text "izzyslegacy" to 61474 to join the registry today!